PATIENT REPORTED OUTCOMES (PROs)

WP-1: Review of existing resources 

WP-2: Identification of obstacles

WP-3: Extension of existing guidelines

WP-4: Education & Dissemination

WP-5: Qualification advice

Chairs

The PROs WG is led by David Riedl (Innsbruck University), Teresa de Rojas (ACCELERATE), and Lia Gore (Children's Hospital Colorado)

Core Group

Academia

Bryce B. Reeve​ (Duke University​)

Martha Grootenhuis ​(Princess Maxima Center)

Anne-Sophie (Darlington​ University of Southampton​)

Ameeta Retzer​ (University of Birmingha)

Pam Kearns​ (University of Birmingham​)

Regulators

Dominik Karres (EMA)

Elizabeth Duke (FDA)

Advocates

Nicole Scobie​ (Zoe4life​)

Vickie Buenger​ (CAC2)

Industry

Solange Corriol-Rohou​ (AZ)

Stergios Zacharoulis​ (BMS)

Aoife Sills​ (Gilead Sciences​)

Extended Group

40 Experts